Hello
Do any of you experience treacle days?
It's an odd feeling really and applies to both physical and mental tasks - essentially I feel like I'm trying to wade through treacle trying to get anything done.
Physically I find that I move much slower and seems to take me ages to do anything and I also tend to drop a lot of things on the floor! Feels like my fingers don't close fully, they feel quite weak, as do the muscles in my legs and arms and I feel a bit shaky.
Mentally, it's very similar to brain fog, just treacle flavoured ;-) lol. Takes a while to think things through, concentration/attention span drops to the floor (possibly below sometimes ha ha) and I seem to forget what I'm doing or why or what I need to get done. It feels a bit surreal/dream-like, almost like I'm moving in slow motion while everyone else is speeding by. These are not my favourite kind of days.
On the plus side, I've not picked up a new infection for about 2 weeks now! (cross fingers, toes, eyes, touch wood etc etc) and long may that continue - at least let me get through my birthday and Christmas - too many good things coming up to be ruined by fatigue and pain.
I have my Superman pin badge on today which is there to help me through the bad days :)
I'd like to always end these blogs on a positive note I think, I don't like being all moany, don't want to depress everybody out there! so 3 positive thoughts for the day:
1. I don't have an infection
2. Yummy spag bol for tea tonight
3. Amazing hugs and support from my boyfriend to come later :)
Keep smiling everyone
x
#mecfs #spoonie #spoonieproblems
Monday 24 November 2014
Tuesday 4 November 2014
Back again
Hello again
It's been quite a while since my last blog post. I've not been well for a while, picking up one thing after another which has also increased my fatigue so writing a blog post has unfortunately felt like too much effort.
Although I'm not feeling back to normal, I am currently off sick, giving me a chance to write a short post.
I just wanted to let you all know that I have officially been diagnosed with chronic fatigue syndrome by the Tropical and Infectious Diseases clinic - I'm not entirely sure why I was at this clinic for fatigue but never mind, it has led to me being referred to Chronic Fatigue Syndrome Therapy Service.
According to the literature I will be invited to attend a CFS group information session run by the CFS Therapy team. The Therapy team consists of health professionals that include a clinical nurse specialist, occupational therapists and clinical psychologists.
The group will be 90 minutes long and aims to provide users with an understanding of the causes of the symptoms, learning how to manage to condition in a more helpful way and how to stop further deterioration. We will be informed about the approaches used by the CFS Therapy service which include pacing, graded activity and Cognitive Behavioural Therapy (CBT).
After this initial group session, it is up to each individual to decide whether or not we feel we need further input from the therapy team. You can then attend on a regular basis for one to one sessions, though unfortunately only a maximum of 12 sessions can taken as long term therapy isn't available within this service.
I'm really hoping this will be the first step towards feeling much better and with the help of my lovely boyfriend James I know we'll make it through to the other side.
It's been quite a while since my last blog post. I've not been well for a while, picking up one thing after another which has also increased my fatigue so writing a blog post has unfortunately felt like too much effort.
Although I'm not feeling back to normal, I am currently off sick, giving me a chance to write a short post.
I just wanted to let you all know that I have officially been diagnosed with chronic fatigue syndrome by the Tropical and Infectious Diseases clinic - I'm not entirely sure why I was at this clinic for fatigue but never mind, it has led to me being referred to Chronic Fatigue Syndrome Therapy Service.
According to the literature I will be invited to attend a CFS group information session run by the CFS Therapy team. The Therapy team consists of health professionals that include a clinical nurse specialist, occupational therapists and clinical psychologists.
The group will be 90 minutes long and aims to provide users with an understanding of the causes of the symptoms, learning how to manage to condition in a more helpful way and how to stop further deterioration. We will be informed about the approaches used by the CFS Therapy service which include pacing, graded activity and Cognitive Behavioural Therapy (CBT).
After this initial group session, it is up to each individual to decide whether or not we feel we need further input from the therapy team. You can then attend on a regular basis for one to one sessions, though unfortunately only a maximum of 12 sessions can taken as long term therapy isn't available within this service.
I'm really hoping this will be the first step towards feeling much better and with the help of my lovely boyfriend James I know we'll make it through to the other side.
Subscribe to:
Posts (Atom)